KARTAGENER SYNDROME
Clinical trials for KARTAGENER SYNDROME explained in plain language.
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Swiss database launched to track rare lung disease
Knowledge-focused Recruiting nowThis study is creating a national patient registry to collect long-term health information from people in Switzerland diagnosed with Primary Ciliary Dyskinesia (PCD), a rare genetic condition that affects the lungs and sinuses. It aims to track how the disease progresses, what tr…
Matched conditions: KARTAGENER SYNDROME
Sponsor: University of Bern • Aim: Knowledge-focused
Last updated Mar 27, 2026 12:39 UTC
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Global effort launches to map hidden symptoms of rare lung disease
Knowledge-focused Recruiting nowThis study aims to better understand the ear, nose, and throat (ENT) problems experienced by people with Primary Ciliary Dyskinesia (PCD), a rare genetic condition that affects the lungs and sinuses. Researchers will observe 1000 patients at clinics worldwide during their regular…
Matched conditions: KARTAGENER SYNDROME
Sponsor: University of Bern • Aim: Knowledge-focused
Last updated Mar 27, 2026 12:38 UTC