Study aims to map respiratory attacks in rare lung disease
NCT ID NCT05161858
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 2 times
Summary
This completed study followed 105 children and adults with primary ciliary dyskinesia (PCD), a rare lung condition, to track how their breathing and quality of life change during respiratory flare-ups. Researchers measured lung function, symptoms, and daily impacts to gather information that could help design future treatment trials. No new drug or therapy was tested.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could provide the data needed to design better clinical trials for preventing and treating respiratory flare-ups in people with primary ciliary dyskinesia.
What could go wrong
This is an observational study, not a treatment trial, so it won't directly improve health. Results may not lead to new therapies if the data are too variable or incomplete.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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McGill University
Montreal, Quebec, H4A 3J1, Canada
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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Stanford University
Palo Alto, California, 94304, United States
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The Hospital for Sick Children
Toronto, Ontario, M5G 0A4, Canada
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University of North Carolina at Chapel Hill
Chapel Hill, North Carolina, 27599, United States
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Washington University in St. Louis
St Louis, Missouri, 63130, United States