Can a simple questionnaire help parents of preemies with lung disease?

NCT ID NCT06474767

Not yet recruiting Symptom relief Sponsor: Johns Hopkins University Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jul 17, 2026 · Updated 1 time

Summary

This pilot study tests whether a pre-visit questionnaire helps Black parents of preterm infants with chronic lung disease set and achieve health goals during primary care visits. Thirty parents will complete the questionnaire before a well-child visit and then report back on goal progress. The study focuses on whether the tool is feasible and acceptable, not on direct health outcomes.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: Pediatric Collaborative Goal Setting (P-CGS) questionnaire
What this could lead to: If successful, this approach could help parents of preterm infants with chronic lung disease feel more involved in their child's care and achieve health goals.
What could go wrong: This is a very small pilot study (30 participants) testing feasibility, not effectiveness. It may not show clear benefits or be generalizable to other groups.

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Conditions

The condition(s) this trial relates to.

bronchopulmonary dysplasia chronic obstructive pulmonary disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CHRONIC LUNG DISEASE

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