French registry sheds light on mysterious overgrowth disorders
NCT ID NCT05563831
First seen Mar 02, 2026 · Last updated May 13, 2026 · Updated 15 times
Summary
This study created the first French national registry for rare overgrowth syndromes, such as CLOVES and Klippel-Trenaunay syndrome. Researchers collected medical and genetic information from 28 children and adults to better understand these conditions and estimate how many people are affected. The goal was to gather knowledge, not to test a treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Translational medicine and Targeted therapies unit, Hôpital Necker Enfants Malades
Paris, 75015, France
Conditions
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