MEGALENCEPHALY

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Completed 1

French registry sheds light on mysterious overgrowth disorders

Knowledge-focused Completed

This study created the first French national registry for rare overgrowth syndromes, such as CLOVES and Klippel-Trenaunay syndrome. Researchers collected medical and genetic information from 28 children and adults to better understand these conditions and estimate how many people…

Matched conditions: MEGALENCEPHALY

Sponsor: Institut National de la Santé Et de la Recherche Médicale, France • Aim: Knowledge-focused

Last updated May 13, 2026 16:02 UTC

MEGALENCEPHALY

Get alerted when new MEGALENCEPHALY trials appear

French registry sheds light on mysterious overgrowth disorders