MACRODACTYLY

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Completed 1

First french registry launched to map mysterious overgrowth conditions

Knowledge-focused Completed

This study created France's first national registry to better understand rare genetic overgrowth disorders. Researchers collected information from 28 patients with conditions like CLOVES and Klippel-Trenaunay syndromes to learn how common these disorders are and how they affect p…

Matched conditions: MACRODACTYLY

Sponsor: Institut National de la Santé Et de la Recherche Médicale, France • Aim: Knowledge-focused

Last updated Apr 01, 2026 14:42 UTC

MACRODACTYLY

Get alerted when new MACRODACTYLY trials appear

First french registry launched to map mysterious overgrowth conditions