Scientists track skin tumor growth in NF1 patients over two years

NCT ID NCT00314119

First seen Nov 01, 2025 · Last updated Jun 18, 2026 · Updated 32 times

Summary

This study followed 17 adults with neurofibromatosis type 1 (NF1) for up to 2 years to see how their skin tumors grow and change. Researchers took detailed photos and skin samples to measure tumor growth and look for genes that might affect tumor behavior. The goal was to better understand these tumors, not to treat them.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for NEUROFIBROMATOSIS TYPE 1 are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

Conditions

The condition(s) this trial relates to.

neurofibroma neurofibromatosis neurofibromatosis type 1

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.