Massive ALS registry launches to uncover disease clues

NCT ID NCT01772602

First seen Apr 29, 2026 · Last updated May 05, 2026 · Updated 2 times

Summary

This study is creating a large national registry of people with ALS in the United States. Researchers will collect information from up to 30,000 participants to better understand how many people have the disease, who is affected, and what environmental or occupational factors might be linked to it. The goal is to gather knowledge, not to test a treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • CDC

    RECRUITING

    Atlanta, Georgia, 30333, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.