Do patients take their meds? new study aims to find out

NCT ID NCT07356557

First seen Jun 27, 2026 · Last updated Jul 01, 2026 · Updated 2 times

Summary

This study at Necker Hospital in Paris is checking how well patients with inherited metabolic diseases follow their daily oral medication routines. About 200 patients (children aged 7 and up, teens, and adults) will fill out a questionnaire during a regular visit. The goal is to see if a future workshop could help improve medication adherence.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this study could show whether a therapeutic education workshop is needed to help patients better stick to their medication plans.
What could go wrong
This is an observational study using questionnaires, so it only measures reported adherence—not actual outcomes. Results may not apply to other hospitals or diseases.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Hôpital Necker-Enfants Malades

    RECRUITING

    Paris, 75015, France

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