Rare bone disease mystery: scientists launch Decade-Long watch
NCT ID NCT02504879
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 29 times
Summary
This study follows 350 adults with melorheostosis, a rare disease that causes bone thickening and pain, to learn how it changes over time and what genetic factors are involved. Participants undergo exams, scans, and tests over about one week, with follow-up visits every two years. The goal is to understand the disease's natural history, not to test a treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Conditions
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