Heart gene hunt: 1,000 volunteers sought to unlock sudden death mystery
NCT ID NCT03049254
First seen May 05, 2026 · Last updated May 05, 2026
Summary
This study is looking for 1,000 people with a genetic heart condition called arrhythmogenic cardiomyopathy (AVC) or their family members. The goal is to discover new genes and blood markers that can predict who will get the disease, how it will progress, and who is at risk for dangerous heart rhythms. By collecting medical data and samples, researchers hope to make diagnosis easier and prevent sudden cardiac death.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Email: •••••@•••••
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Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55905, United States
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Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Royal Papworth Hospital NHS Foundation Trust
RECRUITINGPapworth Everard, Cambridge, CB23 3RE, United Kingdom
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Conditions
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