500-Patient registry aims to unlock better care for rare lymphatic disorders
NCT ID NCT07131293
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is a large European registry that will observe up to 500 patients with lymphatic disorders related to congenital heart disease. Researchers will collect data on current diagnostic imaging and treatments like lymphatic embolization to see which approaches improve symptoms and lab results. The goal is to identify best practices and create standardized care guidelines across Europe. No new treatments are being tested; this is purely observational.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Rigshospitalet, Copenhagen University Hospital
RECRUITINGCopenhagen, 2100, Denmark
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact