500-Patient registry aims to unlock better care for rare lymphatic disorders

This study is a large European registry that will observe up to 500 patients with lymphatic disorders related to congenital heart disease. Researchers will collect data on current diagnostic imaging and treatments like lymphatic embolization to see which approaches improve symptoms and lab results. The goal is to identify best practices and create standardized care guidelines across Europe. No new treatments are being tested; this is purely observational.