Could childhood surgery for hirschsprung disease affect bladder and sexual health years later?

NCT ID NCT07742436

Not yet recruiting Knowledge-focused Sponsor: University Hospital, Grenoble Source: ClinicalTrials.gov ↗

First seen Aug 03, 2026 · Last updated Aug 04, 2026 · Updated 1 time

Summary

This study looks at the long-term urinary, sexual, and bowel health of people aged 7 to 25 who had surgery for Hirschsprung disease as young children. Hirschsprung disease is a rare birth defect where part of the large intestine lacks nerve cells, causing blockages. Surgery removes the affected bowel segment, but the operation happens near nerves important for bladder and sexual function. Researchers want to see if about 10% of patients experience lasting urinary symptoms, and whether the type of surgery (Swenson, Duhamel, or Soave) makes a difference. Participants will fill out online questionnaires about urinary symptoms, sexual function, quality of life, and bowel function—no extra visits or exams are needed.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: Pull-through procedure (Swenson, Duhamel, or Soave) performed as part of routine care
What this could lead to: If this study succeeds, it could lead to better long-term follow-up care for people who had Hirschsprung disease surgery, helping to catch and manage urinary and sexual issues earlier.
What could go wrong: This is an observational study, so it won't test a new treatment. The results depend on people accurately reporting their symptoms, and the findings may not apply to everyone with Hirschsprung disease.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for HIRSCHSPRUNG DISEASE are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

Hirschsprung disease Lower Urinary Tract Symptoms physiological sexual disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

HIRSCHSPRUNG DISEASE

Contacts and locations

Locations

APHM

Marseille, France
Chu Clermont Ferrand

Clermont-Ferrand, France
Chu Grenoble Alpes

Grenoble, 38000, France
Chu Saint Etienne

Saint-Etienne, France
Hfme Lyon

Lyon, France

More trials for these conditions

Other studies related to the condition(s) this trial covers.