Massive study aims to unlock secrets of rare cancer syndrome
NCT ID NCT01443468
First seen Nov 01, 2025 · Last updated May 14, 2026 · Updated 24 times
Summary
This study follows up to 5,000 people with Li-Fraumeni syndrome (LFS), a genetic condition that raises the risk for several cancers. Researchers collect medical and family history, blood samples, and questionnaires to better understand cancer patterns, genetic causes, and emotional impacts. No treatment is given; the goal is to gather knowledge to improve future care and screening.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Cancer Institute - Shady Grove
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-••••
Conditions
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