New study tracks daily life impact of rare eye disease
NCT ID NCT03295071
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looked at 44 people with a rare inherited eye condition called Leber Hereditary Optic Neuropathy (LHON) that causes vision loss. Researchers reviewed medical records and asked participants about their vision, health, and quality of life. The goal was to better understand how the disease affects daily living and to gather information for future research.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Alkek Eye Center
Houston, Texas, 77030, United States
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CHNO Les Quinze Vingts
Paris, 75012, France
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CHU d'Angers
Angers, 49100, France
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Doheny Eye Center UCLA Pasadena
Pasadena, California, 91105, United States
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Emory University Hospital
Atlanta, Georgia, 30322, United States
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Institut Catala de Retina
Barcelona, 08022, Spain
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Massachusetts Eye and Ear Infirmary
Boston, Massachusetts, 02114, United States
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Moorfields Eye Hospital
London, Greater London, EC1V 2PD, United Kingdom
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Ospedale Bellaria
Bologna, 40139, Italy
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Ospedale San Raffaele
Milan, 20132, Italy
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Wills Eye Institute
Philadelphia, Pennsylvania, 19107, United States