600 volunteers needed for huntington disease study using phones and computers

NCT ID NCT06475898

Recruiting now Knowledge-focused Sponsor: Huntington Study Group Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This study aims to collect health information from 600 adults with Huntington disease or those who carry the gene but have no symptoms yet. Participants will answer online questions from home over 24 months. The goal is to learn how the disease progresses and what factors might affect its speed.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study could help researchers better understand how Huntington disease progresses and identify factors that speed up or slow down the disease.
What could go wrong: This is an observational study, not a treatment trial. It will not test any drug or therapy, so there is no direct benefit to participants. The results may not lead to new treatments.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Huntington disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

HUNTINGTON DISEASE

Contacts and locations

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Study contacts

Contact

Email: •••••@•••••

Locations

Huntington Study Group
RECRUITING

Rochester, New York, 14618, United States

Contact Email: •••••@•••••

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