Huntington disease study goes remote: 600 volunteers needed for 2-Year health tracking

NCT ID NCT06475898

First seen Nov 01, 2025 · Last updated May 11, 2026 · Updated 27 times

Summary

This study aims to collect health information from 600 adults with Huntington disease (or those who carry the gene but have no symptoms yet) over 24 months. Participants will answer online surveys from home, helping researchers understand how the disease progresses and what factors affect its speed. No treatment is given; the goal is to gather knowledge for future research.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Huntington Study Group

    RECRUITING

    Rochester, New York, 14618, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.