Real-World data to show if HAE drug works in kids
NCT ID NCT07251933
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study tracks 40 children aged 2 to 12 with hereditary angioedema (HAE) who are taking lanadelumab to prevent sudden, painful swelling attacks. Researchers will look at medical records to see how long kids stay attack-free and how the drug performs in daily life. No new treatments are given; the goal is to understand real-world effectiveness and safety.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
lanadelumab (Takhzyro)
What this could lead to
If successful, this study could confirm that lanadelumab effectively prevents swelling attacks in children with HAE in everyday settings.
What could go wrong
This is an observational study using existing records, not a controlled trial, so results may be less reliable. It is also small (40 children) and focused on a rare condition.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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AP-HM- Hopital de La Timone
RECRUITINGMarseille, Bouches-du-Rhone, 13005, France
Contact Email: •••••@•••••
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AP-HP - Hopital Armand Trousseau
RECRUITINGParis, 75012, France
Contact
Contact Email: •••••@•••••
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CHU de Grenoble Alpes - Hopital Couple-Enfant
RECRUITINGLa Tronche, Grenoble, 38700, France
Contact
Contact Email: •••••@•••••
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Centro de Alergia e Inmunologia Clinica Mar del Plata
NOT_YET_RECRUITINGMar del Plata, Buenos Aires, 7600, Argentina
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Contact Email: •••••@•••••
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Charite Campus Virchow-Klinikum-Augustenburger Platz 1
RECRUITINGBerlin, 13353, Germany
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Contact Email: •••••@•••••
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Children and Youth Health Care Institute of Vojvodina
RECRUITINGNovi Sad, 21000, Serbia
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Contact Email: •••••@•••••
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Childrens University Hospital
NOT_YET_RECRUITINGBelgrade, 11000, Serbia
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Contact Email: •••••@•••••
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Hadassah Medical Center- Ein Kerem - PPDS
RECRUITINGJerusalem, 9112001, Israel
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Hamophilie Zentrum Rhein Main GmbH
RECRUITINGFrankfurt am Main, Hesse, 60596, Germany
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Contact Email: •••••@•••••
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Hospital Italiano de Buenos Aires
RECRUITINGBuenos Aires, Ciudad Autonoma de BuenosAires, C1199ABB, Argentina
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Contact Email: •••••@•••••
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Hospital de Ninos Sor Maria Ludovica
NOT_YET_RECRUITINGLa Plata, Buenos Aires, B1904CSI, Argentina
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Contact Email: •••••@•••••
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Hospital de Pediatria S.A.M.I.C.- Prof. Dr. Juan P. Garrahan
NOT_YET_RECRUITINGCiudad de Buenos Aires, Buenos Aires F.D., C1249ABN, Argentina
Contact
Contact Email: •••••@•••••
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Klinikum St. Georg Leipzig
RECRUITINGLeipzig, Saxony, 4129, Germany
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Contact Email: •••••@•••••
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Mother and Child Health Care Institute of Serbia Dr Vukan Cupic
RECRUITINGBelgrade, 11000, Serbia
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Contact Email: •••••@•••••
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Royal Victoria Infirmary
RECRUITINGNewcastle upon Tyne, Tyne and Wear, NE1 4LP, United Kingdom
Contact Email: •••••@•••••
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Sanatorio de la Canada-Cordoba
RECRUITINGCórdoba, X5000BSQ, Argentina
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Contact Email: •••••@•••••
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Schneider Childrens Medical Center of Israel Petah Tikvah PIN
RECRUITINGPetah Tikva, 4910000, Israel
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Contact Email: •••••@•••••
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Tel Aviv Sourasky Medical Center
RECRUITINGTel Aviv, 6423906, Israel
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Contact Email: •••••@•••••
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The Royal London Hospital - PPDS
RECRUITINGLondon, E1 1FR, United Kingdom
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Contact Email: •••••@•••••
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Universitaetsklinikum Schleswig-Holstein - Campus Luebeck
RECRUITINGLübeck, Schleswig-Holstein, 23538, Germany
Contact
Contact Email: •••••@•••••
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Universitatsklinikum Frankfurt am Main
NOT_YET_RECRUITINGFrankfurt am Main, Hesse, 60590, Germany
Contact
Contact Email: •••••@•••••
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Universitatsklinikum Leipzig
RECRUITINGLeipzig, Saxony, 4103, Germany
Contact
Contact Email: •••••@•••••
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Universitatsklinikum Munster
RECRUITINGMünster, North Rhine-Westphalia, 48149, Germany
Contact
Contact Email: •••••@•••••
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Universitatsklinikum Ulm
NOT_YET_RECRUITINGUlm, Baden-Wurttemberg, 89081, Germany
Contact
Contact Email: •••••@•••••