New study tracks rare muscle disease without offering treatment
NCT ID NCT05046821
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 150 adults with sporadic inclusion body myositis (sIBM) for two years to see how the disease progresses. Participants visit the clinic every six months for tests like muscle strength, breathing, and swallowing. No treatments are given—the goal is to learn more about the disease to help design future studies.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for INCLUSION BODY MYOSITIS are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Brigham and Women's Hospital
Boston, Massachusetts, 02115, United States
-
Johns Hopkins University
Baltimore, Maryland, 21287, United States
-
Kansas University Medical Center
Fairway, Kansas, 66205, United States
-
Nerve and Muscle Center of Texas
Houston, Texas, 77030, United States
-
Ohio State University
Columbus, Ohio, 43221, United States
-
Oregon Health & Science University
Portland, Oregon, 97239, United States
-
University of California, Irvine
Orange, California, 92868, United States
-
University of California, Los Angeles
Los Angeles, California, 90095, United States
-
University of Colorado
Aurora, Colorado, 80045, United States
-
University of Miami
Miami, Florida, 33136, United States
-
University of Pennsylvania
Philadelphia, Pennsylvania, 19104, United States
-
University of Washington
Seattle, Washington, 98195, United States
-
Washington University in St. Louis
St Louis, Missouri, 63110, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Wearable sensors could revolutionize monitoring of rare muscle disease
- Can diet help manage a rare muscle disease? new study seeks answers
- Shocking muscles to move: new exercise hope for nerve disease patients
- Patients take the lead: rare myositis study puts your voice first
- Could a transplant drug help patients with rare muscle disease?
- New drug ABC008 shows promise in slowing rare muscle disease