New study tracks muscle decline in rare disease to unlock clues
NCT ID NCT05046821
First seen Feb 19, 2026 · Last updated May 19, 2026 · Updated 15 times
Summary
This study follows 150 adults with sporadic inclusion body myositis (sIBM), a rare muscle disease, for two years. Researchers will measure muscle strength, breathing, and swallowing every six months to understand how the disease progresses. No treatments are tested—the goal is to gather information that could help design future therapies.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Brigham and Women's Hospital
Boston, Massachusetts, 02115, United States
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Johns Hopkins University
Baltimore, Maryland, 21287, United States
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Kansas University Medical Center
Fairway, Kansas, 66205, United States
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Nerve and Muscle Center of Texas
Houston, Texas, 77030, United States
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Ohio State University
Columbus, Ohio, 43221, United States
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Oregon Health & Science University
Portland, Oregon, 97239, United States
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University of California, Irvine
Orange, California, 92868, United States
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University of California, Los Angeles
Los Angeles, California, 90095, United States
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University of Colorado
Aurora, Colorado, 80045, United States
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University of Miami
Miami, Florida, 33136, United States
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University of Pennsylvania
Philadelphia, Pennsylvania, 19104, United States
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University of Washington
Seattle, Washington, 98195, United States
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Washington University in St. Louis
St Louis, Missouri, 63110, United States
Conditions
Explore the condition pages connected to this study.