Scientists launch major effort to track rare nerve disease in children

This study collects health information and biological samples from up to 700 people under 30 with early-onset hereditary spastic paraplegia (HSP). Researchers aim to better understand how the disease progresses over time and create a registry for future studies. Participants provide blood, skin, or saliva samples and complete regular check-ins. No new treatments are tested, but the data will help design future clinical trials.