New study reveals how HHT symptoms impact daily life
NCT ID NCT07191639
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looked at how symptoms of hereditary hemorrhagic telangiectasia (HHT) affect patients' quality of life. Researchers used a special questionnaire developed with patient input to measure different aspects like physical limits, worry about bleeding, and social relationships. The goal was to better understand which symptoms matter most to patients, beyond just nosebleeds. 185 adults with HHT took part, and the study is now complete.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Hôpital Femme-Mère-Enfant - Centre de référence pour la maladie de Rendu-Osler
Bron, 69500, France