No new drug: study tracks bleeding in hemophilia b patients

NCT ID NCT05568459

First seen Nov 01, 2025 · Last updated May 06, 2026 · Updated 22 times

Summary

This study watches 11 males with Hemophilia B who already get regular factor IX treatment to prevent bleeding. Researchers will track bleeding events, joint health, and quality of life for 6 months. No new drug is tested; the goal is to gather information for future studies.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Barts Health NHS Trust, Royal London Hospital

    London, E1 1FR, United Kingdom

  • Georgetown University Medical Center

    Washington D.C., District of Columbia, 20057, United States

  • Indiana Hemophilia and Thrombosis Center

    Indianapolis, Indiana, 46260, United States

  • Klinikum der Johann Wolfgang Goethe-Universitaet Frankfurt

    Frankfurt, 60590, Germany

  • McMaster University Medical Centre - Hamilton Health Sciences

    Hamilton, Ontario, L8N 3Z5, Canada

  • Mcgill University Health Center (MUHC)

    Montreal, Quebec, H4A 3J1, Canada

  • Nationwide Children's Hospital

    Columbus, Ohio, 43205, United States

  • Rush University Medical Center

    Chicago, Illinois, 60612, United States

  • Southampton General Hospital

    Southampton, Hampshire, SO16 6YD, United Kingdom

  • St. Thomas' Hospital

    London, SE1 7EH, United Kingdom

  • University Hospital Hamburg Eppendorf

    Hamburg, 20246, Germany

  • University Hospital of Regensburg

    Regensburg, Bavaria, 93053, Germany

  • University of Colorado Hemophilia and Thrombosis Center

    Aurora, Colorado, 80045, United States

  • University of Florida

    Gainesville, Florida, 32610, United States

  • University of Michigan

    Ann Arbor, Michigan, 48109, United States

  • University of Texas Health Science Center at Houston

    Houston, Texas, 77030, United States

  • Yale HTC

    New Haven, Connecticut, 06510, United States

Conditions

Explore the condition pages connected to this study.