No new drug: study tracks bleeding in hemophilia b patients on usual care
NCT ID NCT05568459
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 11 males with Hemophilia B who already receive regular factor IX therapy to prevent bleeding. Researchers will collect information on bleeding events, treatment use, and quality of life over at least 6 months. No experimental treatment is given; the goal is to better understand the disease for future studies.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Barts Health NHS Trust, Royal London Hospital
London, E1 1FR, United Kingdom
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Georgetown University Medical Center
Washington D.C., District of Columbia, 20057, United States
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Indiana Hemophilia and Thrombosis Center
Indianapolis, Indiana, 46260, United States
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Klinikum der Johann Wolfgang Goethe-Universitaet Frankfurt
Frankfurt, 60590, Germany
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McMaster University Medical Centre - Hamilton Health Sciences
Hamilton, Ontario, L8N 3Z5, Canada
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Mcgill University Health Center (MUHC)
Montreal, Quebec, H4A 3J1, Canada
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Nationwide Children's Hospital
Columbus, Ohio, 43205, United States
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Rush University Medical Center
Chicago, Illinois, 60612, United States
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Southampton General Hospital
Southampton, Hampshire, SO16 6YD, United Kingdom
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St. Thomas' Hospital
London, SE1 7EH, United Kingdom
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University Hospital Hamburg Eppendorf
Hamburg, 20246, Germany
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University Hospital of Regensburg
Regensburg, Bavaria, 93053, Germany
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University of Colorado Hemophilia and Thrombosis Center
Aurora, Colorado, 80045, United States
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University of Florida
Gainesville, Florida, 32610, United States
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University of Michigan
Ann Arbor, Michigan, 48109, United States
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University of Texas Health Science Center at Houston
Houston, Texas, 77030, United States
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Yale HTC
New Haven, Connecticut, 06510, United States