Can a single gene shot free hemophilia b patients from regular infusions?

NCT ID NCT05164471

First seen Jul 31, 2026 · Last updated Jul 31, 2026

Summary

This trial tests a gene therapy called FLT180a in adults with hemophilia B, a condition where the body lacks a clotting protein. The therapy delivers a working gene to help the body produce its own clotting factor. A small group of participants will receive a single dose and be followed for a year to see if it safely boosts clotting factor levels and reduces bleeding episodes.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance
A gene therapy called verbrinacogene setparvovec (FLT180a) that delivers a working gene to help the body produce its own clotting factor IX.
What this could lead to
If successful, this could offer a one-time treatment that reduces or eliminates the need for regular clotting factor infusions in people with hemophilia B.
What could go wrong
This is an early-stage trial with a small number of participants, so results may not apply broadly. Gene therapy carries risks like immune reactions or the body not producing enough factor IX.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Children's Hospital of Los Angeles

    Los Angeles, California, 90027, United States

  • Glasgow Royal Infirmary

    Glasgow, United Kingdom

  • Guys Hospital

    London, United Kingdom

  • Royal Free London NHS Foundation Tust

    London, United Kingdom

  • Royal Victoria Infirmary

    Newcastle, United Kingdom

  • University of Michigan

    Ann Arbor, Michigan, 48109, United States

  • University of South Florida

    Tampa, Florida, 33612, United States

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