10,000 heart patients join online registry to unlock secrets of cardiomyopathy

NCT ID NCT04612296

Recruiting now Knowledge-focused Sponsor: Imperial College London Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is building a large online registry of 10,000 adults with cardiomyopathy or myocarditis, plus those with a strong family history. Researchers will track participants over time to see how many experience serious events like heart failure, dangerous heart rhythms, or death. The goal is to better understand these heart conditions, not to test a new treatment.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study could reveal patterns that help doctors better predict and manage heart complications in people with cardiomyopathy.
What could go wrong: This is an observational study, not a treatment trial. It collects data but does not test any therapy, so it cannot directly improve health. Results may take years and might not lead to clear changes in care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

cardiomyopathy dilated cardiomyopathy hypertrophic cardiomyopathy myocarditis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CARDIOMYOPATHIES MYOCARDITIS

Contacts and locations

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Study contacts

Contact

Email: •••••@•••••

Locations

Imperial College London
RECRUITING

London, United Kingdom

Contact Email: •••••@•••••

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