Massive hunt for Huntington's clues: 2,500 volunteers needed for spinal fluid study
NCT ID NCT02855476
First seen Jan 07, 2026
Summary
This study aims to collect cerebrospinal fluid and blood samples from 2,500 people at various stages of Huntington's disease, as well as healthy volunteers. The goal is to find biological markers that can help researchers develop new treatments. Participants must be between 11 and 75 years old and, except for family or community controls, have had a genetic test for Huntington's.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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Birmingham Huntingtons Disease Clinic
RECRUITINGBirmingham, West Midlands, B15 2 FG, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Cambridge University Hospitals NHS Foundation Trust
RECRUITINGCambridge, CB2 0PY, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Cardiff University
RECRUITINGCardiff, CF24 4HQ, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Cenexel
RECRUITINGEnglewood, Colorado, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Email: •••••@•••••
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Centre Hospitalier Universitaire d'Angers
RECRUITINGAngers, 49000, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Centre for Movement Disorders
COMPLETEDToronto, Ontario, M3B 2S7, Canada
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Cruces University Hospital
ACTIVE_NOT_RECRUITINGBilbao, Biscay, 48903, Spain
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Dresden University
RECRUITINGDresden, Saxony, 01307, Germany
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fife Health Board - Whyteman's Brae Hospital
ACTIVE_NOT_RECRUITINGKirkcaldy, KY1 2ND, United Kingdom
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Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta
ACTIVE_NOT_RECRUITINGMilan, 20133, Italy
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George Huntington Institute
RECRUITINGMünster, 48149, Germany
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Georgetown University
RECRUITINGWashington D.C., District of Columbia, 20057, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Glasgow Clinical Research Facility
RECRUITINGGlasgow, Scotland, G51 4TF, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Gulbenkian Institute of Molecular Medicine
RECRUITINGLisbon, 1649-028, Portugal
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospital de Sant Pau
RECRUITINGBarcelona, 08041, Spain
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Institute of Psychiatry and Neurology
ACTIVE_NOT_RECRUITINGWarsaw, 02-957, Poland
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John Hopkins University
RECRUITINGBaltimore, Maryland, 21287, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Kbo-Isar-Amper-Klinikum Taufkirchen (Vils)
RECRUITINGTaufkirchen, 84416, Germany
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Le Centre Hospitalier Universitaire de Bordeaux
RECRUITINGBordeaux, 33076, France
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Leeds Teaching Hospital Trust
RECRUITINGLeeds, LS7 4SA, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Lega Italiana Ricera Huntington
RECRUITINGRome, 00185, Italy
Contact
Contact Email: •••••@•••••
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NZ Brain Research Institute
RECRUITINGChristchurch, Canterbury, 8011, New Zealand
Contact Email: •••••@•••••
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North Bristol NHS Trust
ACTIVE_NOT_RECRUITINGBristol, BS10 5NB, United Kingdom
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North York General Hospital
RECRUITINGToronto, Ontario, M2K 1E1, Canada
Contact
Contact Email: •••••@•••••
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Oxford University Hospitals NHS Foundation Trust
RECRUITINGOxford, OX3 9DU, United Kingdom
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Ramón y Cajal Universitary Hospital
RECRUITINGMadrid, 28034, Spain
Contact
Contact Email: •••••@•••••
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Royal Devon & Exeter NHS Foundation Trust
RECRUITINGExeter, Devon, EX2 5DW, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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St George's University Of London
RECRUITINGLondon, SW17 0RE, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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St Josef And Elisabeth Hospital
RECRUITINGBochum, 44791, Germany
Contact Email: •••••@•••••
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The Ottawa Hospital
RECRUITINGOttawa, Ontario, K1Y 4E9, Canada
Contact Email: •••••@•••••
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The University of Auckland
RECRUITINGGrafton, Auckland, 1023, New Zealand
Contact Phone: •••-•••-•••• Email: •••••@•••••
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The Walton Centre NHS Foundation Trust
RECRUITINGLiverpool, L9 7LJ, United Kingdom
Contact Email: •••••@•••••
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University College London Hospitals NHS Foundation Trust
RECRUITINGLondon, NW1 2PG, United Kingdom
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital Ulm
RECRUITINGUlm, Baden-Wurttemberg, 89081, Germany
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital of Erlangen
RECRUITINGErlangen, 91054, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospitals Plymouth NHS Trust
RECRUITINGPlymouth, PL6 5FP, United Kingdom
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of British Columbia, The Centre for Huntingtons Disease
ACTIVE_NOT_RECRUITINGVancouver, British Columbia, V6T 2B5, Canada
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University of Texas Health Science Center
RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Vanderbilt University Medical Center
RECRUITINGNashville, Tennessee, 37212, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Wake Forest University
COMPLETEDWinston-Salem, North Carolina, 27109, United States
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could identify key biological markers that help develop new treatments for Huntington's disease.
What could go wrong
This is an observational study, not a treatment trial. It may not directly lead to a therapy, and results depend on participant diversity and sample quality.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.