New registry aims to unlock secrets of rare leukemia

NCT ID NCT02560883

Recruiting now Knowledge-focused Sponsor: Ohio State University Comprehensive Cancer Center Source: ClinicalTrials.gov ↗

First seen Jul 02, 2026 · Last updated Jul 02, 2026

Summary

This study creates a registry for people with hairy cell leukemia (HCL), a rare form of adult leukemia. Researchers will track disease course, treatments, infections, and patient-reported outcomes over time. The goal is to identify trends, improve care, and design future clinical trials. Adults with classic or variant HCL can join.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this registry could help doctors identify the best treatments and uncover hidden complications, ultimately improving survival and quality of life for people with this rare leukemia.
What could go wrong: This is an observational registry, not a treatment trial. It collects data but does not test any new therapy, so direct patient benefits may take years to emerge.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

hairy cell leukemia hairy cell leukemia variant leukemia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

LEUKEMIA, OTHER

Contacts and locations

Locations

BC Cancer, Part of the Provincial Health Services Authority
RECRUITING

Vancouver, Britsh Columbia, V5Z 4E6, Canada
Cancer Care Manitoba
RECRUITING

Winnipeg, Manitoba, R3E 0V9, Canada
Mayo Clinic
RECRUITING

Rochester, Minnesota, 55905, United States
Mount Sinai Medical Center of Florida
RECRUITING

Miami Beach, Florida, 33140, United States
Ohio State University Comprehensive Cancer Center
RECRUITING

Columbus, Ohio, 43210, United States
Peter MacCallum Cancer Center
RECRUITING

Melbourne, Victoria, VIC 3000, Australia
University of Miami/Soffer Clinical Research Center
RECRUITING

Miami, Florida, 33136, United States
University of Rochester /Wilmot Cancer Institute
RECRUITING

Rochester, New York, 14642, United States

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