New registry aims to unlock secrets of rare leukemia
NCT ID NCT02560883
First seen Jul 02, 2026 · Last updated Jul 02, 2026
Summary
This study creates a registry for people with hairy cell leukemia (HCL), a rare form of adult leukemia. Researchers will track disease course, treatments, infections, and patient-reported outcomes over time. The goal is to identify trends, improve care, and design future clinical trials. Adults with classic or variant HCL can join.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could help doctors identify the best treatments and uncover hidden complications, ultimately improving survival and quality of life for people with this rare leukemia.
What could go wrong
This is an observational registry, not a treatment trial. It collects data but does not test any new therapy, so direct patient benefits may take years to emerge.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- BAFF CAR-T for Blood Cancers Trial NCT07679919
- Moxetumomab & Rituximab for Hairy Cell Leukemia NCT03805932
- Low-Dose Vemurafenib + Rituximab for Hairy Cell NCT05388123
- CAR T-Cell Therapy for Leukemia and Lymphoma (NCT00466531)
- ALA-101 CAR-iNKT Cell Therapy for NHL and Leukem NCT07518329
- Binimetinib for Hairy Cell Leukemia Trial NCT04322383
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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BC Cancer, Part of the Provincial Health Services Authority
RECRUITINGVancouver, Britsh Columbia, V5Z 4E6, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Cancer Care Manitoba
RECRUITINGWinnipeg, Manitoba, R3E 0V9, Canada
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55905, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Mount Sinai Medical Center of Florida
RECRUITINGMiami Beach, Florida, 33140, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Ohio State University Comprehensive Cancer Center
RECRUITINGColumbus, Ohio, 43210, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Peter MacCallum Cancer Center
RECRUITINGMelbourne, Victoria, VIC 3000, Australia
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Miami/Soffer Clinical Research Center
RECRUITINGMiami, Florida, 33136, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Rochester /Wilmot Cancer Institute
RECRUITINGRochester, New York, 14642, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••