Family genetics study hopes to unlock mystery of chronic bladder pain

NCT ID NCT00389142

First seen Jan 05, 2026 · Last updated May 14, 2026 · Updated 16 times

Summary

This study aims to find genetic factors that may cause interstitial cystitis (also called bladder pain syndrome), a condition with no known cause or cure. Researchers are collecting blood or saliva samples and medical information from 1,000 people with the condition and their family members across North America. No travel to Boston is needed. The study does not test any treatment—it only observes and analyzes DNA to better understand the disease.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Email: •••••@•••••

Locations

  • Boston Children's Hospital (BCH)

    RECRUITING

    Boston, Massachusetts, 02115, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.