New registry aims to unlock secrets of rare liver cancer

NCT ID NCT04874519

First seen Jun 27, 2026 ยท Last updated Jun 27, 2026

Summary

This study gathered information from 12 people with fibrolamellar cancer (FLC) around the world. Participants shared their medical history and regular care details through an online registry. The goal was to create a database for future research, not to provide treatment.

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Conditions

The condition(s) this trial relates to.

fibrolamellar hepatocellular carcinoma liver cancer Liver Neoplasms

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Memorial Sloan Kettering Cancer Center (All Protocol Activities)

    New York, New York, 10065, United States