Family secrets? study maps how relatives talk about genetic health risks

NCT ID NCT01633021

Completed Knowledge-focused Sponsor: National Human Genome Research Institute (NHGRI) Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study explored how family members share health information about genetic diseases like sickle cell, diabetes, and cancer. Over 1,000 adults completed surveys or interviews about their family health history and support. The goal was to understand social and relational factors that affect communication, which could help improve genetic disease treatment and support plans.

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Conditions

The condition(s) this trial relates to.

cancer cardiovascular disorder diabetes mellitus hereditary disease neoplasm sickle cell disease Sickle Cell Trait

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CANCER CARDIOVASCULAR DISEASE DIABETES GENETIC SCREENING SICKLE CELL

Contacts and locations

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Locations

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, 45229-3039, United States
Geisinger Autism & Developmental Medicine Institute

Lewisburg, Pennsylvania, 17837, United States
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike

Bethesda, Maryland, 20892, United States