Family secrets? study maps how relatives talk about genetic health risks
NCT ID NCT01633021
First seen Jun 27, 2026 · Last updated Jul 09, 2026 · Updated 3 times
Summary
This study explored how family members share health information about genetic diseases like sickle cell, diabetes, and cancer. Over 1,000 adults completed surveys or interviews about their family health history and support. The goal was to understand social and relational factors that affect communication, which could help improve genetic disease treatment and support plans.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45229-3039, United States
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Geisinger Autism & Developmental Medicine Institute
Lewisburg, Pennsylvania, 17837, United States
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National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, 20892, United States
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