What do sleep disorder patients and their caregivers really need? a new study aims to find out
NCT ID NCT07498452
First seen Mar 30, 2026 · Last updated Jun 23, 2026 · Updated 14 times
Summary
This observational study surveys 150 people with isolated REM sleep behavior disorder (iRBD) and their caregivers. iRBD causes people to act out dreams during sleep and is linked to future brain diseases. The study asks about their emotional well-being, access to information, and support needs. Results may help improve care and resources for these families.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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Azienda Ospedaliera Universitaria Integrata Verona
RECRUITINGVerona, Veneto, 37134, Italy
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Azienda Ospedaliero Universitaria Pisana
RECRUITINGPisa, Tuscany, 56124, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Azienda Ospedaliero-Universitaria di Cagliari
RECRUITINGCagliari, Sardinia, 09124, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fondazione Istituto Neurologico Nazionale Casimiro Mondino IRCCS
RECRUITINGPavia, Lombardy, 27100, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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I.R.C.C.S. Associazione Oasi Maria SS. - Ospedale Classificato
RECRUITINGTroina, Sicily, 94018, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Istituto delle Scienze Neurologiche di Bologna
RECRUITINGBologna, Emilia-Romagna, 40139, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Ospedale Policlinico San Martino
RECRUITINGGenoa, Liguria, 16132, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Ospedale San Raffaele
RECRUITINGMilan, Lombardy, 20132, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Email: •••••@•••••
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could help doctors and researchers better support patients and families living with isolated REM sleep behavior disorder, improving education and care.
What could go wrong
This is an observational survey, not a treatment trial. It will not test any drug or therapy, so it cannot directly change disease outcomes.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.