New study tracks how DM1 affects chinese patients over time
NCT ID NCT06101940
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 1000 Chinese patients with myotonic dystrophy type 1 (DM1) to understand how the disease affects multiple body systems and leads to disability. Researchers will collect health data and blood samples every 3 to 6 months for several years. The goal is to identify risk factors for serious outcomes like breathing problems or heart issues, and to build tools that help doctors manage the disease better.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Chifeng Municipal Hospital
Chifeng, Neimenggu, China
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Children's Hospital of Fudan University
Shanghai, Shanghai Municipality, China
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Chinese People's Liberation Army General Hospital
Beijing, Beijing Municipality, China
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First Affiliated Hospital of Chongqing Medical University
Chongqing, Chongqing Municipality, China
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First Hospital of Shanxi Medical University
Taiyuan, Shanxi, China
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Fujian Medical University Union Hospital
Fuzhou, Fujian, China
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Huashan Hospital
Shanghai, 200040, China
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Peking University First Hospital
Beijing, Beijing Municipality, China
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Qilu Hospital of Shandong University
Jinan, Shandong, China
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Sichuan Provincial People's Hospital
Chengdu, Sichuan, China
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Southern Hospital of Southern Medical University
Guangzhou, Guangdong, China
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The First Affiliated Hospital of Nanchang University）
Nanchang, Jiangxi, China
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The First Affiliated Hospital of Soochow University
Suzhou, Jiangsu, China
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The First Bethune Hospital of Jilin University
Changchun, Jilin, China
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The First People's Hospital of Yancheng
Yancheng, Jiangsu, China
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The General Hospital of Western Theater Command
Chengdu, Sichuan, China
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The Third Hospital of Hebei Medical University
Shijiazhuang, Hebei, China
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Wuhan University People's Hospital
Wuhan, Hubei, China
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Xi'an Gaoxin Hospital
Xi’an, Shanxi, China
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Xi'an People's Hospital
Xi’an, Shanxi, China
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Yunnan Provincial People's Hospital
Kunming, Yunnan, China
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Zhongda Hospital Southeast University
Nanjing, Jiangsu, China