Giving parents a digital voice in early intervention plans

NCT ID NCT06458959

ENROLLING_BY_INVITATION Symptom relief Sponsor: University of Illinois at Chicago Source: ClinicalTrials.gov ↗

First seen Aug 14, 2026 · Last updated Aug 14, 2026

Summary

This study tests a digital tool that helps parents of young children with developmental delays or disabilities organize and share their priorities with early intervention professionals. The tool, called PEM+, is designed to make family-centered care more practical by guiding families to express what they want to work on and how. Researchers will see if using this tool before a child's annual review improves family engagement in the planning process.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: A digital care-planning tool (PEM+) that helps parents organize and share their priorities for their child's early intervention services
What this could lead to: If effective, this tool could give families a stronger voice in designing their child's early intervention plan, potentially improving service quality and family engagement.
What could go wrong: This is a relatively small study, and the tool's benefits may not extend to all families or settings. It also requires internet and phone access, which could limit who can use it.

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Conditions

The condition(s) this trial relates to.

developmental disability learning disability

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

DEVELOPMENTAL DELAY DEVELOPMENTAL DISABILITIES

Contacts and locations

Locations

University of Illinois Chicago

Chicago, Illinois, 60612, United States

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