New registry aims to unlock secrets of rare anemia
NCT ID NCT00106015
First seen Apr 21, 2026 · Last updated May 16, 2026 · Updated 4 times
Summary
This study is building a registry of up to 900 people with Diamond Blackfan anemia (DBA), a rare inherited bone marrow condition that causes low red blood cells. Researchers will collect medical information and genetic data to learn more about how DBA develops and affects patients over time. No experimental treatments are given; the goal is simply to gather knowledge.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Cohen Children's Medical Center of NY
RECRUITINGNew Hyde Park, New York, 11040, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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