Scientists investigate why cystinosis causes early aging

NCT ID NCT07319091

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study looks at how energy production inside cells (mitochondria) works in people with cystinosis, a rare disease that causes cystine buildup and early aging. Researchers will measure cell energy activity in 25 patients and compare it to healthy people. The goal is to understand why cystinosis leads to bone disease and other complications, which could help find new treatments in the future.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this research could uncover the biological causes of premature aging and bone disease in cystinosis, pointing toward new treatment targets.

What could go wrong

This is a small, early observational study (25 participants) that measures cellular activity, not a treatment trial. It may not lead directly to therapies.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

cystinosis muscle tissue disorder nephropathic cystinosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Service de Néphologie et endocrinologie pédiatrique, Hôpital Arnaud de Villeneuve

    Montpellier, 34295, France

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  • Service de Néphrologie pédiatrique, Hôpital Jeanne de Flandre

    Lille, 59000, France

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  • Service de Néphrologie pédiatrique, Hôpital Necker-Enfants Malades

    Paris, 75015, France

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  • Service de Néphrologie pédiatrique, Hôpital Robert Debré

    Paris, 75019, France

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  • Service de Néphrologie pédiatrique, Hôpital de la Timone

    Marseille, 13385, France

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  • Service de Néphrologie-Dialyse-Transplantation pédiatrique, Hôpital d'enfants Brabois

    Vandœuvre-lès-Nancy, 54511, France

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  • Service de Néphrologie-transplantation rénale adultes, Hôpital Necker-Enfants Malades

    Paris, 75015, France

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  • Service de néphrologie et exploration fonctionnelle rénale, Hôpital Edouard Herriot, Hospices Civils de Lyon

    Lyon, 69003, France

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  • Service de néphrologie pédiatrique, Hôpital Femme Mère Enfant, Hospices Civils de Lyon

    Bron, 69677 Bron Cedex, France

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    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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