Cystinosis study probes drug compliance and brain risks
NCT ID NCT02012114
First seen Jan 11, 2026 · Last updated May 13, 2026 · Updated 24 times
Summary
This study looked at 65 people with cystinosis to see how well they take their cysteamine medicine and if that affects brain problems. Researchers measured drug use with special bottle caps and diaries, and used brain scans and memory tests to check for cystine buildup. The goal was to learn more about why some patients develop neurological issues and how to improve treatment.
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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Hospices Civils de Lyon
Lyon, 69002, France
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