Europe launches major study to track rare 'Crystal' disease
NCT ID NCT05901077
Summary
This study aims to create a detailed European registry of 400 people with cystinosis, a rare genetic disease where crystals damage organs. Researchers will collect health information over time to understand how the disease progresses and identify ways to improve patient care. The study focuses on gathering data rather than testing new treatments.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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RaDiCo-ECYSCO
RECRUITINGParis, Île-de-France Region, 75012, France
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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