New program aims to ease dementia care decisions for african american families

NCT ID NCT05139290

ENROLLING_BY_INVITATION Knowledge-focused Sponsor: Emory University Source: ClinicalTrials.gov ↗

First seen Jul 17, 2026 · Last updated Jul 17, 2026

Summary

This study develops and tests a decision-making program designed specifically for African American adult daughters who make healthcare choices for their parents with dementia. The program focuses on communication, problem-solving, and understanding the healthcare system, all while respecting cultural identity. Researchers will first gather information through surveys and interviews, then test a prototype with 20 parent-daughter pairs to see if it improves quality of life and decision-making confidence.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: a culturally tailored family-based behavioral program focused on communication, problem-solving, health system literacy, and family systems
What this could lead to: If successful, this could lead to a culturally sensitive support program that helps African American families make better healthcare decisions for loved ones with dementia.
What could go wrong: This is a small, early-phase study with only 40 participants, so results may not apply to all families. The intervention is still being designed and tested for feasibility.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Alzheimer disease Caregiver Burden dementia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

ALZHEIMER DISEASE CAREGIVER BURDEN DEMENTIA

Contacts and locations

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Locations

Emory Healthcare Integrated Memory Care Clinic

Atlanta, Georgia, 30329, United States
Emory University Goizueta Alzheimer's Disease Research Center Minority Engagement Core

Atlanta, Georgia, 30329, United States
Metro-Atlanta

Atlanta, Georgia, 30340, United States
Zeta Phi Beta Sorority, Inc.

Washington D.C., District of Columbia, 20009, United States

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