Hemophilia pain mystery: new study aims to uncover hidden suffering

NCT ID NCT05202951

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study surveys 350 adults with hemophilia to better understand chronic pain—its type, location, and impact on daily life. Participants fill out questionnaires about their pain history, medication use, and emotional well-being. The goal is to help doctors recognize and treat pain more effectively in this population.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could lead to better pain management strategies for people with hemophilia by identifying pain patterns and raising awareness among doctors.

What could go wrong

This is an observational survey, not a treatment trial. It will not directly improve pain, and results may not apply to all patients due to language or internet access limits.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Chronic Pain chronic pain syndrome hemophilia hemophilia A

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • CH Métropole Savoie

    Chambéry, France

  • CHU de Bordeaux

    Bordeaux, France

  • CHU de Clermont-Ferrand

    Clermont-Ferrand, 63000, France

  • CHU de Grenoble

    Grenoble, France

  • CHU de LILLE

    Lille, France

  • CHU de Saint-Etienne

    Saint-Etienne, France

  • CHU de TOULOUSE

    Toulouse, France

  • Centre Hospitalier Universitaire de Caen Normandie

    Caen, France

  • Centre Hospitalier Universitaire de Nantes

    Nantes, France

  • Hospices Civils de Lyon

    Lyon, France