Scientists track rare bone cancer to unlock future treatments

NCT ID NCT03910465

First seen Jun 27, 2026 · Last updated Aug 07, 2026 · Updated 6 times

Summary

This study follows 300 children and adults with chordoma, a rare bone cancer of the skull base or spine. Researchers will track how the disease progresses over time using imaging, physical exams, and surveys. The goal is to better understand chordoma's behavior to design more effective future treatments and supportive care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this study could provide crucial insights into chordoma's behavior, helping design better treatments and supportive care for patients.
What could go wrong
This is an observational study, not testing a new treatment. It may not directly lead to new therapies, and results depend on participant follow-up.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

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Other studies related to the condition(s) this trial covers.