What does 'Complex' really mean? new study seeks to improve care for seriously ill kids

NCT ID NCT07102433

First seen Nov 15, 2025 · Last updated May 15, 2026 · Updated 27 times

Summary

This study aims to understand what 'complexity' means for children with life-limiting illnesses by talking to kids, parents, and professionals across health, education, and social care. The goal is to create a shared definition that helps coordinate better care and support. About 170 participants will be interviewed and take part in workshops to shape future services.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Birmingham Children's Hospital

    Birmingham, B46NH, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Chailey Clinical Services, Sussex Community NHS Foundation Trust

    Chailey, BN84JN, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Guy's and St Thomas' NHS Foundation Trust

    London, SE1 9RT, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Royal Marsden Hospital

    London, SW36JJ, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Shooting Star Children's Hospices

    Hampton, TW12 3RA, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.