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Family impact of preterm lung disease under the microscope

NCT ID NCT07134387

Recruiting now Knowledge-focused Sponsor: Global Foundation for the Care of Newborn Infants Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study surveys 480 parents and caregivers of children under 18 who were born prematurely and developed bronchopulmonary dysplasia (BPD), a chronic lung condition. Researchers want to understand how BPD affects the family's quality of life, emotional well-being, and finances over time. No treatment or intervention is being tested—this is purely an information-gathering study.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this study could highlight areas where families need more support, guiding better resources and care for those affected by BPD.
What could go wrong
This is an observational survey, not a treatment trial. Results depend on honest reporting and may not apply to all families or regions.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

bronchopulmonary dysplasia Caregiver Burden Premature Birth

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

BRONCHOPULMONARY DYSPLASIA (BPD) CHRONIC LUNG DISEASE OF NEWBORN HRQOL (HEALTH RELATED QUALITY OF LIFE)

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

Locations

  • Global Foundation for the Care of Newborn Infants (GFCNI)

    RECRUITING

    München, Bavaria, 81379, Germany

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