Global brain tumor registry aims to unlock secrets of rare childhood cancers

NCT ID NCT02417324

Recruiting now Knowledge-focused Sponsor: Universitätsklinikum Hamburg-Eppendorf Source: ClinicalTrials.gov ↗

First seen Jan 11, 2026 · Last updated Jun 23, 2026 · Updated 30 times

Summary

This international registry collects medical data and biological samples from children and adults with rare brain tumors like medulloblastoma and ependymoma. By gathering information from patients not in clinical trials, researchers hope to improve treatment recommendations and international cooperation. The study does not test any new drug or therapy.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Angelika-Lautenschläger-Klinik
RECRUITING

Heidelberg, 69120, Germany
Asklepios Klinik Sankt Augustin
RECRUITING

Sankt Augustin, 53757, Germany
Carl-Thiem-Klinikum Cottbus
RECRUITING

Cottbus, 03048, Germany
Charite Campus, University of Berlin
RECRUITING

Berlin, 13353, Germany
Cnopf'sche Kinderklinik
RECRUITING

Nuremberg, 90419, Germany
Dr. Horst Schmidt Kliniken
WITHDRAWN

Wiesbaden, 65199, Germany
Evangelisches Krankenhaus Bielefeld
RECRUITING

Bielefeld, 33617, Germany
Gemeinschaftsklinikum Koblenz-Mayen
RECRUITING

Koblenz, 56073, Germany
Gemeinschaftskrankenhaus Herdecke
RECRUITING

Herdecke, 58313, Germany
Georg-August-Universität Göttingen
RECRUITING

Göttingen, 37075, Germany
HELIOS Klinikum Krefeld
NOT_YET_RECRUITING

Krefeld, 47805, Germany
HELIOS Klinikum-Erfurt
RECRUITING

Erfurt, 99089, Germany
Helios Kliniken Schwerin
RECRUITING

Schwerin, 19049, Germany
Helios Klinikum Berlin-Buch
RECRUITING

Berlin, 13125, Germany
Johannes Wesling Klinikum Minden
RECRUITING

Minden, 32429, Germany
Klinikum Augsburg
RECRUITING

Augsburg, 86156, Germany
Klinikum Braunschweig
RECRUITING

Braunschweig, 38118, Germany
Klinikum Bremen-Mitte
RECRUITING

Bremen, 28177, Germany
Klinikum Chemnitz
RECRUITING

Chemnitz, 09116, Germany
Klinikum Dortmund
RECRUITING

Dortmund, 44137, Germany
Klinikum Duisburg
ACTIVE_NOT_RECRUITING

Duisburg, 47055, Germany
Klinikum Kassel
ACTIVE_NOT_RECRUITING

Kassel, 34125, Germany
Klinikum Oldenburg
RECRUITING

Oldenburg, 26133, Germany
Klinikum Schwabing, Pediatric Hospital of Technical University
RECRUITING

München, 80804, Germany
Klinikum Stuttgart
RECRUITING

Stuttgart, 70176, Germany
Klinikum der Stadt Wolfsburg
RECRUITING

Wolfsburg, 38440, Germany
Medizinische Hochschule Hannover
RECRUITING

Hanover, 30625, Germany
SLK-Kliniken
RECRUITING

Heilbronn, 74078, Germany
Städtisches Klinikum Karlsruhe
RECRUITING

Karlsruhe, 76133, Germany
UK-SH Campus Kiel
RECRUITING

Kiel, 24105, Germany
University Hopsital Jena
RECRUITING

Jena, 07740, Germany
University Hospital Aachen
RECRUITING

Aachen, 52074, Germany
University Hospital Cologne
NOT_YET_RECRUITING

Cologne, 50924, Germany
University Hospital Dresden
RECRUITING

Dresden, 01307, Germany
University Hospital Erlangen
RECRUITING

Erlangen, 91054, Germany
University Hospital Essen
RECRUITING

Essen, 45147, Germany
University Hospital Frankfurt/Main
RECRUITING

Frankfurt, 60590, Germany
University Hospital Freiburg
RECRUITING

Freiburg im Breisgau, 79106, Germany
University Hospital Greifswald
RECRUITING

Greifswald, 17475, Germany
University Hospital Halle/Saale
RECRUITING

Halle, 06120, Germany
University Hospital Homburg/Saar
RECRUITING

Homburg, 66421, Germany
University Hospital Leipzig
ACTIVE_NOT_RECRUITING

Leipzig, 04103, Germany
University Hospital Magdeburg
RECRUITING

Magdeburg, 39120, Germany
University Hospital Mainz
RECRUITING

Mainz, 55131, Germany
University Hospital Mannheim
RECRUITING

Mannheim, 68167, Germany
University Hospital Regensburg
RECRUITING

Regensburg, 93053, Germany
University Hospital Rostock
RECRUITING

Rostock, 18057, Germany
University Hospital Ulm
RECRUITING

Ulm, 89075, Germany
University Medical Center Hamburg-Eppendorf
RECRUITING

Hamburg, 20246, Germany

Contact Phone: •••-•••-•••• Email: •••••@•••••

Contact Phone: •••-•••-•••• Email: •••••@•••••
Universität München - von Haunersches
RECRUITING

München, 80337, Germany
Universitäts-Kinderklinik Düsseldorf
RECRUITING

Düsseldorf, 40225, Germany
Universitätsklinik Tübingen
RECRUITING

Tübingen, 72076, Germany
Universitätsklinikum Gießen und Marburg
RECRUITING

Giessen, 35392, Germany
Universitätsklinikum Münster
RECRUITING

Münster, 48149, Germany
Universitätsklinikum Schleswig-Holstein
RECRUITING

Lübeck, 23538, Germany
Universotätsklinikum Würzburg
RECRUITING

Würzburg, 97080, Germany
Vestische Kinder- und Jugendklinik, University Witten/Herdecke
ACTIVE_NOT_RECRUITING

Datteln, 45711, Germany

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this registry could lead to better treatment guidelines and improved understanding of rare brain tumors.

What could go wrong

This is an observational registry, not a treatment trial. It collects information but does not test any new therapy, so direct patient benefits may take years.

Conditions

The condition(s) this trial relates to.

central nervous system primitive neuroectodermal neoplasm choroid plexus neoplasm ependymoma medulloblastoma pineal body neoplasm Pinealoma pineoblastoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CHILDHOOD BRAIN TUMOR