New registry aims to unlock secrets of bone disorder
NCT ID NCT02597881
First seen Apr 02, 2026 · Last updated May 10, 2026 · Updated 4 times
Summary
This study is creating a database of health information from people with achondroplasia, a bone growth condition. Researchers will collect data from medical records of up to 1,500 patients across several U.S. hospitals. The goal is to better understand growth patterns, surgeries, and other health outcomes to guide future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Johns Hopkins University
RECRUITINGBaltimore, Maryland, 21205, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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