Hidden danger: muscle disease linked to deadly clots
NCT ID NCT03424460
First seen Jun 26, 2026 · Last updated Jun 26, 2026 · Updated 1 time
Summary
This study investigates why people with myotonic dystrophy type 1 are 10 times more likely to develop dangerous blood clots in the legs or lungs. Researchers will compare blood samples from 130 participants—including patients with the disease, those with a history of clots, and healthy volunteers—to look for clotting abnormalities. The goal is to understand the cause, which could lead to better prevention strategies.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this research could point toward ways to prevent life-threatening blood clots in people with myotonic dystrophy type 1.
What could go wrong
This is an observational study, not a treatment trial. It may not lead directly to new therapies, and the findings might not apply to all patients.
Disclaimer
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Service de Cardiologie - Hôpital Cochin
Paris, Île-de-France Region, 75014, France