NIH launches major study to unlock secrets of rare inflammatory diseases
NCT ID NCT00059748
First seen Jun 27, 2026 · Last updated Jul 17, 2026 · Updated 5 times
Summary
This study follows up to 5,000 people with autoinflammatory diseases (like NOMID, CANDLE, and juvenile dermatomyositis) and their healthy relatives. Researchers will collect medical history, blood samples, and imaging over 2-5 day visits to learn how these diseases work and find better ways to measure disease activity. The goal is to understand the immune system problems and genetic causes, which may lead to new treatments in the future. No experimental treatment is given in this study.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
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