ALS patients share what hurts during clinical trials
NCT ID NCT06325865
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study interviewed 15 people with ALS to learn about unpleasant sensations or pain they experienced during clinical trial procedures. The goal was to identify which procedures cause discomfort and how long it lasts, so future trials can be more patient-friendly. Researchers also measured anxiety and functional status to better support participants.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could help design more comfortable clinical trial procedures for ALS patients and improve their participation experience.
What could go wrong
This is a small, completed interview study with only 15 participants, so findings may not apply to all ALS patients or settings.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Istituto Auxologico italiano IRCSS, San Luca Hospital
Milan, 20145, Italy