Massive biobank launched to unlock secrets of rare genetic disease
NCT ID NCT00884455
Summary
This study is creating a large collection of medical information and tissue samples (like blood, liver, or lung tissue) from people with Alpha-1 Antitrypsin Deficiency. The goal is to build a resource for future scientists to study this genetic condition. Participants provide information and samples, and may be contacted yearly for updates over a 15-year period.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for ALPHA 1-ANTITRYPSIN DEFICIENCY are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
University of Florida
Gainesville, Florida, 32610, United States
Conditions
Explore the condition pages connected to this study.