Massive global registry tracks Real-World outcomes for rare kidney disease

NCT ID NCT01522183

Recruiting now Knowledge-focused Sponsor: Alexion Pharmaceuticals, Inc. Source: ClinicalTrials.gov ↗

First seen Jun 24, 2026 · Last updated Jun 26, 2026 · Updated 1 time

Summary

This observational study follows 3,000 people with atypical hemolytic-uremic syndrome (aHUS), a rare and serious kidney condition. Researchers will collect safety and effectiveness data on patients treated with eculizumab or ravulizumab, as well as those receiving other care. The goal is to better understand long-term outcomes and complications of the disease and its treatments.

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Conditions

The condition(s) this trial relates to.

atypical hemolytic-uremic syndrome thrombotic microangiopathy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

ATYPICAL HEMOLYTIC UREMIC SYNDROME

Contacts and locations

Show contact details

Study contacts

Contact

Email: •••••@•••••

Locations

Clinical Trial Site
RECRUITING

Aurora, Colorado, 80045, United States
Clinical Trial Site
RECRUITING

Washington D.C., District of Columbia, 20007, United States
Clinical Trial Site
RECRUITING

Gainesville, Florida, 32610, United States
Clinical Trial Site
RECRUITING

Atlanta, Georgia, 30322, United States
Clinical Trial Site
WITHDRAWN

Chicago, Illinois, 60614, United States
Clinical Trial Site
RECRUITING

Boston, Massachusetts, 02115, United States
Clinical Trial Site
RECRUITING

St Louis, Missouri, 63110, United States
Clinical Trial Site
WITHDRAWN

Winston-Salem, North Carolina, 27103, United States
Clinical Trial Site
ACTIVE_NOT_RECRUITING

Columbus, Ohio, 43210, United States
Clinical Trial Site
RECRUITING

Cairns, Queensland, 4870, Australia
Clinical Trial Site
RECRUITING

Herston, Queensland, 4029, Australia
Clinical Trial Site
RECRUITING

Woolloongabba, Queensland, 4102, Australia
Clinical Trial Site
RECRUITING

Adelaide, South Australia, 5000, Australia
Clinical Trial Site
RECRUITING

Heidelberg, Victoria, 3084, Australia
Clinical Trial Site
RECRUITING

Parkville, Victoria, 3050, Australia
Clinical Trial Site
RECRUITING

Parkville, Victoria, 3052, Australia
Clinical Trial Site
RECRUITING

Murdoch, Western Australia, 6961, Australia
Clinical Trial Site
ACTIVE_NOT_RECRUITING

Nedlands, Western Australia, 6109, Australia
Clinical Trial Site
ACTIVE_NOT_RECRUITING

Brussels, 1020, Belgium
Clinical Trial Site
RECRUITING

Brussels, 1070, Belgium
Clinical Trial Site
RECRUITING

Brussels, 1090, Belgium
Clinical Trial Site
RECRUITING

London, Ontario, N6A 5W9, Canada
Clinical Trial Site
RECRUITING

Toronto, Ontario, M5G 1X8, Canada
Clinical Trial Site
RECRUITING

Montreal, Quebec, H3T 1C5, Canada
Clinical Trial Site
RECRUITING

Québec, Quebec, 44035, Canada
Clinical Trial Site
RECRUITING

Odense, 5000, Denmark
Clinical Trial Site
RECRUITING

Angers, 49933, France
Clinical Trial Site
RECRUITING

Bayonne, 64109, France
Clinical Trial Site
ACTIVE_NOT_RECRUITING

Bordeaux, 33076, France
Clinical Trial Site
RECRUITING

Brest, 29609, France
Clinical Trial Site
RECRUITING

Bron, 69677, France
Clinical Trial Site
RECRUITING

Caen, 30001, France
Clinical Trial Site
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Chambéry, 73011, France
Clinical Trial Site
RECRUITING

Clermont-Ferrand, 63000, France
Clinical Trial Site
RECRUITING

Dijon, 21080, France
Clinical Trial Site
RECRUITING

Grenoble, 38043, France
Clinical Trial Site
RECRUITING

Le Kremlin-Bicêtre, 94270, France
Clinical Trial Site
RECRUITING

Lille, 59037, France
Clinical Trial Site
WITHDRAWN

Lille, France
Clinical Trial Site
RECRUITING

Lyon, France
Clinical Trial Site
RECRUITING

Marseille, France
Clinical Trial Site
RECRUITING

Montpellier, France
Clinical Trial Site
RECRUITING

Nancy, 54500, France
Clinical Trial Site
RECRUITING

Nantes, 44 093, France
Clinical Trial Site
RECRUITING

Nice, 51069, France
Clinical Trial Site
RECRUITING

Perpignan, France
Clinical Trial Site
RECRUITING

Poitiers, France
Clinical Trial Site
RECRUITING

Pontoise, France
Clinical Trial Site
RECRUITING

Rennes, 35203, France
Clinical Trial Site
RECRUITING

Rennes, France
Clinical Trial Site
RECRUITING

Toulouse, 31059, France
Clinical Trial Site
RECRUITING

Toulouse, 70034, France
Clinical Trial Site
RECRUITING

Tours, France
Clinical Trial Site
RECRUITING

Valenciennes, 50479, France
Clinical Trial Site
RECRUITING

Essen, 45147, Germany
Clinical Trial Site
RECRUITING

Heidelberg, 69120, Germany
Clinical Trial Site
ACTIVE_NOT_RECRUITING

Lübeck, 23538, Germany
Clinical Trial Site
RECRUITING

Münster, 48149, Germany
Clinical Trial Site
WITHDRAWN

Tübingen, 72076, Germany
Clinical Trial Site
RECRUITING

Beersheba, 84101, Israel
Clinical Trial Site
RECRUITING

Florence, 50134, Italy
Clinical Trial Site
RECRUITING

Genova, 16147, Italy
Clinical Trial Site
RECRUITING

Milan, 20163, Italy
Clinical Trial Site
RECRUITING

Roma, 00165, Italy
Clinical Trial Site
WITHDRAWN

Torino, Italy
Clinical Trial Site
RECRUITING

Lodz, 92-213, Poland
Clinical Trial Site
RECRUITING

Lodz, 93-338, Poland
Clinical Trial Site
COMPLETED

Saint Petersburg, Russia
Clinical Trial Site
RECRUITING

Dongan, Chungcheongnam-do, 31151, South Korea
Clinical Trial Site
RECRUITING

Seoul, Dongnam-ro, 05278, South Korea
Clinical Trial Site
ACTIVE_NOT_RECRUITING

Anyang-si, Gyeonggi-do, 14068, South Korea
Clinical Trial Site
WITHDRAWN

Goyang-si, Gyeonggi-do, 411-706, South Korea
Clinical Trial Site
RECRUITING

Daegu, Hyeonchung-ro, 42415, South Korea
Clinical Trial Site
RECRUITING

Gwangju, Jebong Ro, 61469, South Korea
Clinical Trial Site
RECRUITING

Daegu, 35015, South Korea
Clinical Trial Site
ACTIVE_NOT_RECRUITING

Jeju-do, 63241, South Korea
Clinical Trial Site
ACTIVE_NOT_RECRUITING

Jeollabuk-do, 54907, South Korea
Clinical Trial Site
RECRUITING

Pamplona, 15-31008, Spain
Clinical Trial Site
WITHDRAWN

Seville, 01-41013, Spain
Clinical Trial Site
TERMINATED

Basel, 4031, Switzerland
Clinical Trial Site
TERMINATED

Bern, 3010, Switzerland
Clinical Trial Site
TERMINATED

Surich, 8091, Switzerland
Clinical Trial Site
RECRUITING

Kaohsiung City, 81362, Taiwan
Clinical Trial Site
RECRUITING

New Taipei City, 10002, Taiwan
Clinical Trial Site
RECRUITING

Taichung, 40447, Taiwan
Clinical Trial Site
RECRUITING

Taoyuan, 33305, Taiwan
Clinical Trial Site
RECRUITING

Ankara, 06500, Turkey (Türkiye)
Clinical Trial Site
RECRUITING

Istanbul, 34093, Turkey (Türkiye)
Clinical Trial Site
RECRUITING

Kayseri, 38039, Turkey (Türkiye)
Clinical Trial Site
RECRUITING

Cardiff, C14 4XW, United Kingdom
Clinical Trial Site
RECRUITING

Exeter, EX2 5DW, United Kingdom
Clinical Trial Site
RECRUITING

London, NW3 2PF, United Kingdom
Clinical Trial Site
RECRUITING

London, W1T 4EU, United Kingdom
Clinical Trial Site
RECRUITING

London, WC1N 3JH, United Kingdom
Clinical Trial Site
RECRUITING

Manchester, M13 9WL, United Kingdom
Clinical Trial Site
WITHDRAWN

Newcastle, NE7 7DN, United Kingdom
Clinical Trial Site
RECRUITING

Southampton, SO16 6YD, United Kingdom
Clinical Trial Site
RECRUITING

Wales, SA6 6NL, United Kingdom
Clinical Trial Site (Adult)
RECRUITING

Edegem, 2650, Belgium
Clinical Trial Site (Adult)
RECRUITING

Leuven, 3000, Belgium
Clinical Trial Site (Adult)
RECRUITING

Liège, 4000, Belgium
Clinical Trial Site (Pediatric)
RECRUITING

Edegem, 2650, Belgium
Clinical Trial Site (Pediatric)
RECRUITING

Woluwe-Saint-Lambert, 1200, Belgium
Clinical Trial Site (adult)
RECRUITING

Woluwe-Saint-Lambert, 1200, Belgium
Clinical Trial Site (pediatric)
RECRUITING

Ghent, 9000, Belgium
Clinical Trial Site (pediatric)
RECRUITING

Leuven, 3000, Belgium
Clinical Trial Site (pediatric)
RECRUITING

Liège, 4000, Belgium
Clinical Trial Site 1
RECRUITING

Westmead, New South Wales, 2145, Australia
Clinical Trial Site 1
RECRUITING

Amiens, 80054, France
Clinical Trial Site 1
RECRUITING

Nancy, 54500, France
Clinical Trial Site 1
RECRUITING

Nantes, 44000, France
Clinical Trial Site 1
RECRUITING

Paris, 75019, France
Clinical Trial Site 1
RECRUITING

Rouen, France
Clinical Trial Site 1
RECRUITING

Strasbourg, France
Clinical Trial Site 1
RECRUITING

Hanover, 30625, Germany
Clinical Trial Site 1
RECRUITING

Bari, 70124, Italy
Clinical Trial Site 1
RECRUITING

Milan, 20122, Italy
Clinical Trial Site 1
COMPLETED

Moscow, Russia
Clinical Trial Site 1
ACTIVE_NOT_RECRUITING

Gyeonggi-do, 13620, South Korea
Clinical Trial Site 1
RECRUITING

Seoul, South Korea
Clinical Trial Site 1
RECRUITING

Barcelona, 09-08035, Spain
Clinical Trial Site 2
RECRUITING

Westmead, New South Wales, 2145, Australia
Clinical Trial Site 2
RECRUITING

Amiens, 80054, France
Clinical Trial Site 2
RECRUITING

Paris, 75015, France
Clinical Trial Site 2
RECRUITING

Rouen, France
Clinical Trial Site 2
RECRUITING

Strasbourg, France
Clinical Trial Site 2
RECRUITING

Hanover, 30625, Germany
Clinical Trial Site 2
RECRUITING

Bari, 70124, Italy
Clinical Trial Site 2
RECRUITING

Milan, 20122, Italy
Clinical Trial Site 2
COMPLETED

Moscow, Russia
Clinical Trial Site 2
RECRUITING

Gyeonggi-do, 46371, South Korea
Clinical Trial Site 2
RECRUITING

Seoul, 02841, South Korea
Clinical Trial Site 2
RECRUITING

Barcelona, 09-08035, Spain
Clinical Trial Site 3
RECRUITING

Paris, 75970, France
Clinical Trial Site 3
RECRUITING

Seoul, 03722, South Korea
Clinical Trial Site 4
RECRUITING

Paris, 75015, France
Clinical Trial Site 4
RECRUITING

Seoul, 08308, South Korea
Clinical Trial Site 5
RECRUITING

Paris, 75743, France
Clinical Trial Site 5
RECRUITING

Seoul, 05505, South Korea
Clinical Trial Site 6
RECRUITING

Seoul, 06351, South Korea
Clinical Trial Site 7
RECRUITING

Seoul, 07985, South Korea

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