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Can a video chat keep dementia care true to Patients' wishes?

NCT ID NCT07824245

Knowledge-focused Sponsor: Tufts Medical Center Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting This study
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Sep 17, 2026 · Last updated Sep 18, 2026 · Updated 1 time

Summary

Researchers at Tufts Medical Center are testing an advance care planning program for people 65 and older who have Alzheimer's disease or related dementias, or who face a higher risk of dying within a year. The program pairs participants with counselors and videos that explain care options, so patients and their families can discuss and document their goals. The trial compares people who get the program right away with those who get it later, and tracks whether their care near the end of life matches what they said they wanted.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
an advance care planning counselor video program
What this could lead to
If it works, this program could give families a clearer way to record and honor what matters to older adults with dementia, so their care matches their wishes near the end of life.
What could go wrong
The program may not change how often care matches patient goals, and video-based planning may not fit every family or culture. The trial measures documentation and care patterns, not whether people feel better.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

About 12,174 people

The number the study aims to enrol. It can still change while the study runs.

Expected to start

Mar 2027

An estimate. Start dates often move.

Expected to finish

Mar 2031

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

65 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: as ascertained within a month of randomization * Age ≥65 years as of the cohort eligibility/index date * At least one qualifying ambulatory encounter during the 12-month assessment window * One of the following 1. Diagnosed with Alzheimer's Disease or Related Dementias (ADRD) based on a pre-specified ICD-10 code list, or 2. Estimated 1-year mortality risk of at least 20%, based on a prespecified health-system mortality-risk algorithm, or 3. Age 90 and above Exclusion Criteria: * Patients receiving hospice or program of All-Inclusive Care for the Elderly (PACE) * Patients who primarily reside in a skilled nursing facility * Incarcerated patients

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Conditions

The condition(s) this trial relates to.

Alzheimer disease dementia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Advance care planning Alzheimer's disease Dementia

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    2 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Dartmouth Health

    Lebanon, New Hampshire, 03756, United States

  • Northwell Health

    New Hyde Park, New York, 11042, United States

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