SPINAL MUSCULAR ATROPHY (SMA)
Clinical trials for SPINAL MUSCULAR ATROPHY (SMA) explained in plain language.
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Can an online group give exhausted caregivers their confidence back?
Symptom relief Not yet recruitingThis study aims to see if an 8-week online support group can help improve the confidence and coping skills of parents and caregivers looking after children with severe muscle diseases (SMA or DMD). Researchers will work with 30 caregivers in Pakistan, providing them with group se…
Matched conditions: SPINAL MUSCULAR ATROPHY (SMA)
Phase: NA • Sponsor: Aga Khan University • Aim: Symptom relief
Last updated Mar 27, 2026 12:39 UTC
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Can horseback riding help kids with SMA move and breathe better?
Symptom relief Not yet recruitingThis study is testing whether a special type of physiotherapy using horses can help children with spinal muscular atrophy (SMA). Twenty children, aged 2 to 9, will try both the horse-assisted therapy and a standard therapy to see which one better improves their movement, posture,…
Matched conditions: SPINAL MUSCULAR ATROPHY (SMA)
Phase: NA • Sponsor: Charles University, Czech Republic • Aim: Symptom relief
Last updated Mar 23, 2026 15:16 UTC
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Study probes emotional toll of Baby's genetic test results on parents
Knowledge-focused Not yet recruitingThis study aims to understand the psychological experience of parents who receive a positive or false-negative result from newborn screening for spinal muscular atrophy (SMA). Researchers will interview parents and ask them to complete questionnaires about their stress, anxiety, …
Matched conditions: SPINAL MUSCULAR ATROPHY (SMA)
Sponsor: University Hospital, Strasbourg, France • Aim: Knowledge-focused
Last updated Mar 23, 2026 15:17 UTC