Can a support group boost confidence for parents of kids with DMD or SMA?

NCT ID NCT07356063

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tests whether a multicomponent support group can improve the confidence (self-efficacy) of primary caregivers of children with Duchenne muscular dystrophy or spinal muscular atrophy in Pakistan. Thirty caregivers will join group sessions with doctors, therapists, and other parents over 8 weeks. Researchers will compare their self-efficacy scores before and after the program.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

multicomponent support group (behavioral intervention)

What this could lead to

If it works, this could show that a structured support group helps caregivers feel more confident and capable in their daily caregiving role.

What could go wrong

This is a very small, early-stage study with only 30 participants and no control group, so results may not apply widely. It measures self-reported confidence, not direct health outcomes for the children.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

Duchenne muscular dystrophy muscular dystrophy spinal muscular atrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

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